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Pediatric Hydrocephalus Foundation, Inc. Introduces New York As Newest State Chapter
November 10, 2009 by PHF
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For Immediate Release
Contact: Kimberly Illions
Monday, November 9th, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org
PRESS RELEASE
New York Joins The PHF In Fight Against Hydrocephalus
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce the State of New York as the fourth official PHF, Inc. chapter, joining the recently formed chapters in Missouri, California & Georgia, in addition to the New Jersey founding chapter.
New York’s State Director for the PHF, Cassandra Thew said “This disease needs better funding. We don’t want to just treat it by shunting because this requires a life long commitment to brain surgeries and all that comes along with it. We had no idea what we were looking at when we were told of Brayden’s diagnosis. We want to give him, and any other child with this incurable brain condition the best future possible. We’re hoping that by using the PHF and our State Chapter in New York, we can reach out to other families and help them understand about Hydrocephalus. With an occurrence rate of 1 in every 500 births, why are we still all alone in this fight?”
Michael Illions, the Vice President and National Director of Advocacy for the Pediatric Hydrocephalus Foundation, Inc. added that “as we continue to grow and find people to work with us like Cassandra and her family in New York and our other State Chapters, we will realize our goal of funding a cure for Hydrocephalus for all our children.”
Cassandra and her family will be interviewed as part of the 5th Annual WHUD 100.7 Children’s Miracle Network Radiothon, which will benefit the Maria Fareri Children’s Hospital at Westchester Medical Center.
The Radiothon will be broadcast live from the lobby of the Children’s Hospital starting November 11th and ending on November 13th. Cassandra, her husband Greg and their son Brayden will be interviewed Friday morning.
The Pediatric Hydrocephalus Foundation, a non-profit 501 (c) (3) charitable organization, educates the community by raising the level of awareness about this brain condition. The PHF provides support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF raises money for and works with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus. Additionally, the PHF advocates on behalf of the members of the Hydrocephalus community and works with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. All donations are tax-deductible.
PHF SPAGHETTI DINNER RAISES OVER $2,000.00 IN EDISON, N.J.
November 4, 2009 by PHF
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MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org
PHF SPAGHETTI DINNER RAISES OVER $2,000.00 IN EDISON, N.J.
Woodbridge, NJ – Four year old Jeffrey Westdyke of Edison, New Jersey goes to preschool 5 days a week, plays with toys, watches TV, goes camping with the rest of his family and makes yucky faces at most green vegetables. This sounds pretty typical for any four year old.
But Jeffrey Westdyke is not a typical four year old boy. Jeffrey suffers from the incurable brain disease Hydrocephalus. Jeffrey’s mother Jennifer and father Jeff, have joined together with parents of 3 other New Jersey families, who also have a child with Hydrocephalus, to start the Pediatric Hydrocephalus Foundation, Inc.
This past Sunday, November 1st, the Westdyke family hosted a Spaghetti dinner fundraising event to benefit the Pediatric Hydrocephalus Foundation, Inc. The 4 hour event raised over $2,000.00 for the Foundation, as 150 people ate, danced, and purchased merchandise from the 6 vendors who helped sponsor the event.
The PFH, Inc. has raised just under $35,000.00 this year with there various fundraising events and plan to fund research projects dealing with Hydrocephalus while also donating money to New Jersey Hospitals that support Pediatric Hydrocephalus patients.
For information about the PHF, Inc., please go to: www.HydrocephalusKids.org.
The Pediatric Hydrocephalus Foundation, a non-profit 501 (c) (3) charitable organization, educates the community by raising the level of awareness about this brain condition. The PHF provides support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF raises money for and works with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.
Additionally, the PHF advocates on behalf of the members of the Hydrocephalus community and works with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus.
All donations are tax-deductible.
For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.
