PHF’s Alabama State Chapter Director Danielle Terry Roberts featured in the Decatur Daily
October 3, 2012 by PHF Filed under Uncategorized
Banding together: Families unite to raise funds for brain disorder foundation
When Danielle Roberts was pregnant with her second child, Reagan, her doctor diagnosed hydrocephalus, a condition in which an excess of cerebrospinal fluid built up in the infants brain. Doctors delivered Reagan
on March 8, 2011, at Vanderbilt Childrens Hospital in Nashville.
Years earlier, another Hartselle woman, Leslie Etheridge, went to Decatur General Hospital for what she thought would be a normal delivery. I ended up in an emergency (cesarean) section, Etheridge said. Even then, I had a difficult time because the babys head was so long. She said she had never heard of hydrocephalus until her doctor explained the condition of her only child, Kane.
The term water head or water babies from high school days came to mind, she said. Our son was taken immediately to (Childrens of Alabama) in Birmingham.
When Etheridge heard about Roberts, she sent an email to offer support.
During the past year, weve emailed each other, spoke on the phone and gone on Facebook, Roberts said. But weve never met.
That will change Saturday at Wilson Morgan Park when the families converge at noon for the first fundraiser in Alabama for the Pediatric Hydrocephalus Foundation.
The event, organized by Roberts when she became director of the state chapter late last year, will run until 3 p.m. The foundation formed more than three years ago and has chapters in 27 other states.
The Morgan County sheriffs helicopter will drop in, and Hartselle police donated an old police cruiser for a smash-up as part of the fundraiser.
People who want to take part will wear safety goggles, Roberts said. Three hits will cost $5 and five hits will cost $8.
The group requests a $5 donation for each person who attends and meal tickets for the hot dog bar will be $2 each.
Roberts and her husband, Kel, have another child, Kayden, 6, a first-grader at Priceville Elementary School.
Etheridge and her husband, Mike, have assisted Kane, 17, their miracle baby, through the ups and downs of life. He is a senior in the Instructional Resource Center at Hartselle High School.
Roberts has no idea how many people from the community will turn up to show their support Saturday or how many new friends, whose lives are impacted by hydrocephalus, she will meet.
Were so new to this, she said. We dont know of many other families dealing with the disease. But wed like for all of them in our area to come forward so we can offer each other support.
Kane Etheridge, taking a break from an adapted physical education class at Hartselle High on Wednesday, eagerly spoke about his interests, which begin and end with Star Wars movies.
Ive recently started making my own movie, called The Rise of a New Empire, he said. Ive got 50 percent of the manuscript done, I think. Im typing it on my dads computer.
Belinda Kay, a Hartselle High special education teacher, said Kane is involved in numerous classes and activities at the school.
Hes very well liked and a very confident person, Kay said. At least half the students know him by name. The Tiger Buddies Club nominated him for Homecoming King.
The Etheridge family is considering a vacation to Los Angeles in 2013 to honor Kanes graduation. And Kane is confident he will meet George Lucas at the filmmakers home in nearby Modesto.
Im going to go over my movie with him and ask him for a job, Kane said. And when he sees my movie, he might hand me his company.
Strikes 1 in 500 children
Hydrocephalus affects an estimated 1 in 500 children. Injuries or infections before birth and brain injuries later in life can cause hydrocephalus. Former Arizona Congresswoman Gabrielle Giffords acquired the disease after being shot in the head last year.
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