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12-Year-Old Madelyn Edgecomb From California Selected as 2015 National Ambassador of Hydrocephalus Awareness for Incurable Brain Condition
January 26, 2015 by PHF Filed under Uncategorized
12-Year-Old Madelyn Edgecomb From California Selected as 2015
National Ambassador of Hydrocephalus Awareness for Incurable Brain Condition
Madelyn was diagnosed with congenital hydrocephalus due to aqueductal stenosis in utero at 21 weeks. She was born at 35 weeks and had first shunt placed at 1 day old. She has had 29 revisions,1 successful ETV and 4 chiari malformation surgeries. She currently is shunted along with the ETV.
Her neurosurgeon is Dr. Peter Sun of UCSF Benioff Children’s Hospital Oakland, (formally Children’s Hospital Oakland), who is amazing! Her shuntaversary is tomorrow and it will mark 1 year since her last revision! Madelyn loves to listen to music,reading, school,and making crafts. Madelyn loves her family and friends.
We are ecstatic to have Madelyn to be chosen as the female representative.Thank you to everyone for all the support over the years. I want to thank all the families of children who have hydrocephalus, for their continuous support.
And, the state chapter directors and board members for their efforts. And Mike and Kim Illions for their continuous dedication to our cause.
