A 16-year-old suffering from the incurable brain condition fundraises for a cure

HORSEHEADS, N.Y. (18 NEWS) –

Bella Sacharczyk is 16 years old. She’s smart, funny, and charismatic. A typical teenage girl. You would never guess that she’s had 20 brain surgeries, but Bella has Hydrocephalus, a incurable condition that involves water in the brain.

On Sunday, she joined together with her family and friends to raise awareness about the disease and fundraise for a cure.

“I feel it’s important for everybody to know about it and to raise awareness, just so that one day some children like me won’t have to suffer,” Bella said.

“We’re just trying to be out there anyway we can to raise awareness to raise funding for a cure,” Denise Sacharczyk, Bella’s mother, said. “There is no cure for children or people with Hydrocephalus.”

Even though people living with Hydrocephalus can experience some pretty serious physical and mental complications, Bella’s family wants people to know her struggles don’t define her or limit her.

“Hydrocephalus is, it can be scary, but doesn’t have to be scary… that the children like Bella, she does everything, she’s not afraid,” Denise said.

“I like to do my schoolwork, and I like to educate people about Hydro, hang out with my family,” Bella said.

Bella is grateful for all the support she got from our community.

“That everybody came here to support me… I feel loved and it’s the best feeling in the world.”

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