Pediatric Hydrocephalus Foundation, Inc. Introduces First Official Support Group
August 23, 2009 by PHF Filed under Uncategorized
For Immediate Release
Contact: Kimberly Illions
Sunday, August 23, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org
Pediatric Hydrocephalus Foundation, Inc. Becomes Official Sponsoring Organization of JFK Medical Center’s Pediatric Hydrocephalus Support Group
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce and introduce their first official support group in the Country; held at the JFK Medical Center in Edison, New Jersey.
While in existence for over 2 years now, the Pediatric Hydrocephalus Support Group has been without official outside organizational support or guidance. With the support group now falling under the leadership of the Pediatric Hydrocephalus Foundation, the PHF will work with the Hospital to grow the group, help coordinate the meetings and arrange for speakers. More importantly, with the hard economic times affecting the Hospital industry; the PHF, Inc. will provide financial support to ensure the continuation of the meetings.
Pediatric Hydrocephalus Foundation President Kimberly Illions said “We are honored to Co-sponsor this Support Group with JFK Medical Center. This has been a longtime goal of the PHF, and we look forward to adding this type of Support Group in hospitals all around the Country.”
Michael Illions, the National Advocacy Director for the Pediatric Hydrocephalus Foundation, added “These groups are a tremendous benefit to the families dealing with this condition and this support system gives them a chance to meet and learn from other families, sharing experiences and hearing from medical experts from the Hydrocephalus Community.”
The Pediatric Hydrocephalus Foundation, Inc. has made a remarkable impact since it’s inception in January 2009; starting with authoring the recently passed House Resolution designating September as “National Hydrocephalus Awareness Month”, and adding State Chapters in Missouri and California, which will carry the mission statement of the PHF, Inc. in these States.
The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition. The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.
Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.