Pediatric Hydrocephalus Foundation, Inc. Introduces Third State Chapter
September 7, 2009 by PHF Filed under Uncategorized
For Immediate Release
Contact: Kimberly Illions
Tuesday, September 8th, 2009
(732) 634-1283
http://www.HydrocephalusKids.org
kim@hydrocephaluskids.org
PRESS RELEASE
Georgia Joins the PHF, Inc. In Battle to ‘Fund a Cure’ for Hydrocephalus
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce the State of Georgia as the third official PHF, Inc. chapter, joining the recently formed chapters in Missouri and California, in addition to the New Jersey founding chapter.
Sawanda Middleton-Spinks, who was named the State Director of the Georgia chapter, is excited to be joining the PHF, Inc. family; “I am so excited to partner with PHF, Inc. and do my part here in Georgia! I want to start by getting the word out that local support IS HERE! Meetings will follow shortly after securing a meeting place. It’s then that we as a group will start creating fund raisers to raise monies for local hospitals, doctors and researchers who help with our Hydrocephalus children.”
Kim Illions, the President of the Pediatric Hydrocephalus Foundation, Inc. and mother of a 4 year old boy with Hydrocephalus, added that “Sawanda is going to do a great job for the Hydrocephalus community in the State of Georgia. Her dedication and commitment to helping her son and other children with Hydrocephalus is an inspiration, and she will do great things in helping us “Fund a Cure” for Hydrocephalus.”
Sawanda’s introduction to Hydrocephalus mirrors that of so many other families; “The first time I heard of Hydrocephalus was when I was 7 months pregnant with my only child, my son Ezekiel. A perinatologist diagnosed him with Hydrocephalus. He gave us the worse case scenario of what my son’s quality of life ‘may’ be. This left my husband and I devastated, feeling angry, sad, confused and alone. I want to help “fund a cure” for Hydrocephalus. More money means more research, updated information and advanced technology to help our children with an improved quality of living with this condition.”
The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition. The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.
The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.
Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.