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6-Year-Old Alabamian Lillian Alberts Selected as 2022 National Ambassador of Hydrocephalus Awareness for Incurable Brain Condition
January 10, 2022 by PHF Filed under Uncategorized
6-Year-Old Alabamian Lillian Alberts Selected as 2022 National Ambassador of Hydrocephalus Awareness for Incurable Brain Condition
Lily was born July 14, 2015 with her twin brother James. Her parents received the news at their anatomy scan that not only did Lily’s twin have Spina bifida, but both twins had congenital hydrocephalus. At three days old, she along with her brother received their first VP shunt placement. At ten days old Lillian got to come home with her brother and begin learning and growing. There was a slight bump in the road at seven weeks old, when Lily had her first shunt malfunction, which ended up being a 20 day hospital stay with two infections and four surgeries.
Thankfully Lily has had no issues with her shunt since! She has overcome much, including being diagnosed with epilepsy and dealing with some physical challenges. Yet through the help of the Drs and specialists at Children’s of Alabama, Early Intervention, Therapists, teachers, friends, and family, Lily has thrived and become an energetic, fun loving 1st grader.
Lillian, who is called Lily, loves reading. She tries reading everything she can, from books to road signs. She is a true Disney fan, and enjoyed a Wish Trip granted by Magic Moments of Alabama to Disney World shortly before the Covid shut down. She was able to meet her favorite Characters, Rapunzel and Flynn Ryder. Currently you can find her singing to the music of Encanto at the top of her lungs in her room. She also loves watching football with her family and cheering on her favorite team, the Alabama Crimson Tide!
