By Donna Eleazer Published January 31, 2024 at 4:11 PM

Linden, NJ – 7-year-old Linden resident Ellery Mendez has been selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness, for Incurable Brain Condition to help raise the level of awareness and education about Hydrocephalus in the United States. Ellery will represent the girls, while 4-year-old Sawyer Taylor from Alabama, will represent the boys. ” Ellery will be featured in advertisement campaigns & promotional materials for Hydrocephalus Awareness as we head towards “National Hydrocephalus Awareness Month” in September,” said Michael Illions. PHF, Inc.

Hydrocephalus occurs in approximately 1 of every 500 births and in over one million Americans today, Hydrocephalus is a condition in which excessive fluid gathers in the brain, abnormally widening spaces in the brain and placing potentially harmful pressure on brain tissue. Because of lack of advancement in treatment, many affected individuals are left unable to lead full and productive lives. Untreated, Hydrocephalus could be fatal.

Yolanda Mendez, Ellie’s mom, shared with Tap into Linden her thoughts,” She is always happy. She was born a fighter. Throughout all her medical battles, which include 4 brain surgeries, Ellie has not only inspired me (her mom) but she has been an inspiration to all of our family, friends, medical staff and anyone who she encounters.” She has such a will to live and can teach every single one of us a lesson about living every day with peace and overflowing joy. Her battle continues as she is non-verbal and communicating her needs and wants can be a challenge, especially when she is not feeling well., said Yolanda.” However, as a family we tirelessly continue to look for new and innovative therapies that help her in her journey forward!

Currently, Ellie attends P G Chambers School in Cedar Knolls. She is non-verbal and has begun training on a communication tablet that will enable her to communicate and express her needs to her family.

The Pediatric Hydrocephalus Foundation, a volunteer-driven non-profit 501(c) (3) charitable organization, educates the community by creating awareness about Hydrocephalus. PHF, with 15 state chapters, provides support to families, friends and children affected by this incurable brain condition. PHF assists the medical community by raising funds to search for treatment options, and ultimately, a cure.