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  • Michigan’s Landon Binder, Who Lost His Battle to An Incurable Brain Condition at 3 Years Old Selected as 2025 National Ambassador of Hydrocephalus Awareness In His Memory

    March 10, 2025 by  
    Filed under Uncategorized

    landonnewOwendale, MI- Landon was born with congenital Hydrocephalus. We had just become foster parents in April of 2014. In September of 2014 we got the call for a little boy who needed a home but had extensive
    medical needs. We had no experience with anything like this and had no idea what to expect. For reasons I didn’t understand my heart was being pulled to meet Landon and speak with his doctors.

    It was instant love, and I began the training we needed to be able to bring Landon home from the NICU.

    A few short days later we brought Landon home. We continued to learn about his medical condition, special needs, and how to provide the care he required. We had several bumps in the road. He required numerous surgeries and appointments at the University of Michigan Children’s hospital.

    That did not stop Landon from being the happiest and most loving boy! He truly loved life and being the center of attention.

    In June of 2017 Landon was granted a Make a Wish trip to Disney to meet his all-time favorite, Mickey Mouse. His dream came true, and he got to meet Mickey and all the princesses. He was so incredibly happy. In July of 2017 we were officially able to adopt Landon, and he became a part of our family forever.

    In August of 2017 Landon became very sick and the doctors at the University of Michigan Children’s hospital were not able to get his shunt to work properly. Landon lost his life to Hydrocephalus. When Landon’s work on earth was done, he continued his legacy by passing on The Gift of Life through organ donation. He was able to help two children through organ donation.

    It has always been our goal as his parents to raise awareness for Hydrocephalus for our sweet boy and those still fighting the fight. Since 2017 we have attended the annual Pediatric Hydrocephalus Foundation Walk in his honor and Team Landon has raised funds to help Hydrocephalus research.

    Even though Landon is not here with us on earth he is continuing to live on through our memories of this sweet, brave, unforgettable little boy. We may no longer be able to hold him in our arms, but we will always hold him in our hearts.

    Our precious Landon taught us more about courage, love, and sacrifice than many people do in their entire life.

    “Sometimes superhero’s live in the hearts of small children fighting big battles.”

    Though he’s gone, his love and legacy will live on through us all.

    We are so grateful for the beautiful memories we shared with Landon, and his spirit will forever remain in our hearts.

    Occurring in approximately 1 of every 500 births and in over one million Americans today, Hydrocephalus is a condition in which excessive fluid gathers in the brain, abnormally widening spaces in the brain and placing potentially harmful pressure on brain tissues. Because of lack of advancements in treatment, many affected individuals are left unable to lead full and productive lives. Left untreated, Hydrocephalus can be fatal.

    Landon will be featured in advertising campaigns & promotional materials for Hydrocephalus Awareness as we head towards “National Hydrocephalus Awareness Month” in September.

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