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PHF Featured Story- PHF GA 1st Annual Hydrocephalus Awareness WALK & Family Fun Day
September 28, 2011 by PHF Filed under Uncategorized
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LOCAL PROFILE: Sawanda Spinks, President of Georgia Pediatric Hydrocephalus Foundation
Read the full story by Eden Godbe: ATLANTA – Sawanda Spinks was eight-months-pregnant when she learned her first child would be born with hydrocephalus.
“I had never heard of it; I didn’t know what it was but when I heard the risks, I started crying; I couldn’t take listening to that”, she said.
Spinks had gone into the emergency room for a pulled muscle but when she left her life was changed, forever.
Hydrocephalus is a condition that affects 1-in-500 infants. The condition, also known as having “water on the brain”, happens when fluid accumulates on the brain and in the skull cavities.
As any first-time parent would Spinks visited countless specialists, searching for good news, before she would give birth to her son a month later; she heard none.
“Doctors didn’t give us much hope but they were doing their job, they’re supposed to tell you the worst case scenario”.
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