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PHF’s South Carolina State Chapter Director Amanda Pierce IN THE NEWS
September 12, 2012 by PHF Filed under Uncategorized
The Pediatric Hydrocephalus Foundation organized the second annual Hydrocephalus Awareness Day in Washington, D.C. The Aug. 24 event drew families from across the country, including a local family battling on behalf of their young daughter.
Amanda Pierce, of Huger, and her two children, including 2-year-old Ava, who has hydrocephalus, drove to Washington, D.C., and joined 20 families from 14 states in meeting with their elected representatives.
Hydrocephalus is a condition where excessive fluid gathers in the brain, abnormally widening spaces and placing potentially harmful pressure on brain tissues. Due to lack of advancements in treatment, many affected individuals are left unable to lead full and productive lives.
The Pediatric Hydrocephalus Foundation, an all-volunteer nonprofit organization, educates the community by creating awareness about hydrocephalus. The organization, with 26 state chapters, provides support to families, friends and children affected by this incurable brain condition.
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