Laurie Berkner Named National Spokesperson for the Pediatric Hydrocephalus Foundation, Inc.
June 16, 2010 by PHF
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Press Release
For Immediate Release
Contact: Kimberly Illions
Tuesday, June 15, 2010
(732) 634-1283
kim@hydrocephaluskids.org
http://www.HydrocephalusKids.org
Laurie Berkner Named National Spokesperson for the Pediatric Hydrocephalus Foundation, Inc.
Children’s Musical Artist Laurie Berkner To Be The “Voice” of September’s “National Hydrocephalus Awareness Month” Public Service Announcements To Be Heard In Every State In The Country Sponsored By The PHF, Inc.
Woodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. (PHF) today formally announced that children’s musical artist Laurie Berkner of The Laurie Berkner Band will serve as their Celebrity National Spokesperson for this September’s “National Hydrocephalus Awareness Month.”
“We are thrilled to have Laurie Berkner joining us in helping to raise awareness,” stated Michael Illions, Vice President and National Director of Advocacy for PHF. “Laurie Berkner is one of the most recognizable names in the entertainment business to children and is a household name in tens of thousands of homes.”
Laurie will serve as the voice of the Pediatric Hydrocephalus Foundation’s Public Service Announcement for September’s “National Hydrocephalus Awareness Month.” The initiative will have the Berkner recorded PSA be heard on at least one radio station in every State in the Country for the entire month of September. Contracts with radio stations in almost 75% of the States have been finalized for this endeavor.
“I am happy to be a part of raising awareness of Hydrocephalus in the United States during September’s “National Hydrocephalus Awareness Month”, and help children like Cole Illions and so many others who are struggling with this incurable brain condition”, said Laurie Berkner.
You can visit the Pediatric Hydrocephalus Foundation’s website for more information and to check the radio stations from around the Country that are participating in this project.
About PHF
The Pediatric Hydrocephalus Foundation, a non-profit 501(c) (3) charitable organization, educates the community by raising the level of awareness about hydrocephalus and provides support to families, friends, and children affected by this brain condition. The PHF also raises money for and works with the medical community in searching for a cure and additional treatment options for those with hydrocephalus. Additionally, the PHF advocates on behalf of the members of the hydrocephalus community and works with policy makers at the state and federal levels to raise awareness and push for more research and support in the fight against hydrocephalus. All donations are tax-deductible. For more information, visit www.hydrocephaluskids.org.
About Laurie Berkner
Laurie Berkner regularly appears on Nick Jr., a television network aimed at children, in music videos played between programs and on the program Jack’s Big Music Show. Berkner has written two children’s books: Victor Vito and Freddie Vasco, based on her song “Victor Vito”, and Story of My Feelings. She has also put out a video and DVD, We Are…The Laurie Berkner Band; the DVD, has sold more than 400,000 copies since its 2006 release.
US Congressman Leonard Lance Attending the September 13th PHF WALK 2009
September 11, 2009 by PHF
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MEDIA CONTACT:
Kim Illions
President
Pediatric Hydrocephalus Foundation, Inc.
(732)634-1283
kim@HydrocephalusKids.org
*Update: US Congressman Leonard Lance Attending the September 13th PHF WALK 2009
Pediatric Hydrocephalus Foundation Gears up for 2009 Statewide WALK to “Fund a Cure for Hydrocephalus”
Congressman Leonard Lance, (NJ-7th), has confirmed his attendance for this Sunday’s PHF WALK 2009, at Roosevelt Park in Edison, NJ at 11:00am. The Hydrocephalus community owes Congressman Lance a great deal of gratitude for his leadership and commitment to see H. Res. 373 pass in time for this year’s WALK. The Resolution, which designates the month of September as “National Hydrocephalus Awareness Month, passed this past July before Congress adjourned for the summer recess.
Cole Illions is a small boy with a huge smile and two parents, Mike and Kim, who dote on him. He also has a little known incurable brain disease known as Hydrocephalus, an accumulation of fluid in the brain that affects an estimated one million Americans of all ages. One in 500 children born this year will be diagnosed with Hydrocephalus.
This is why Mike and Kim Illions, along with 3 other families, have founded the Pediatric Hydrocephalus Foundation, Inc. They have become tireless advocates for their children and others living with Hydrocephalus. The Pediatric Hydrocephalus Foundation authored H. Res. 373 designating the month of September as “National Hydrocephalus Awareness Month.” This resolution was recently passed unanimously by the US Congress in July 2009. Mike & Kim’s Congressman Leonard Lance was one of the first to Co-Sponsor H. Res. 373 and helped to get it passed in time for this year’s WALK.
On Sunday, September 13th, 2009 at Roosevelt Park in Edison, NJ they will be joined by friends, family, and people living with Hydrocephalus along with well wishers in a 2 mile walk to raise awareness and funds. Registration begins at 10:30am and the walk will start at 11:00am although it is recommended to register ahead of time. This event will be attended by over 300 people.
This year’s WALK has the pleasure of Bill Evans of ABC Channel 7 News as its Honorary Chairperson. There will be live music, entertainment for the kids, free food, soft drinks and a visit from the NJ Devil’s Dancers. The WALK will also have various items up for auction and raffle.
To register for the WALK and/or donate to the PHF, Inc., go to: www.HydrocephalusKids.org and click on “Register” or “Donate”.
All proceeds will benefit the Pediatric Hydrocephalus Foundation, Inc, the nation’s largest organization dealing solely with the support, education, advocacy and funding for research of Pediatric Hydrocephalus.
For more information please contact Kim Illions at kim@Hydrocephaluskids.org or (732) 634-1283.