Play mini-golf on Oct. 5 to raise money to research and cure the condition.

The Pediatric Hydrocephalus Foundation invites Woodbridge families to Skyline Mini-Golf on Saturday, Oct. 5 for a fundraising event that will benefit children with the brain condition.

At 10 a.m. Oct. 5, Mini-Golf Family Fun Day will entail rounds of mini-golf, giveaways and door prizes.

The day’s guests of honor are Anthony Pascale and Cole Illions, two eight-year-old boys living with the condition who have undergone a total of 15 brain surgeries, according to a press release from the Pediatric Hydrocephalus Foundation.

Cole Illions’ parents are Michael and Kim Illions, Woodbridge residents and founders of the Pediatric Hydrocephalus Foundation.

Admission is $7 for adults, $5 for children.

Visit www.HydrocephalusKids.org for more information.

Contact Kimberly Illions at 732-634-1283 or kim@hydrocephaluskids.org for more information.

GRAVES COUNTY, Ky – A local boy is fighting a lifelong, rare, incurable disease. Hydrocephalus or more commonly known as “water on the brain” is when fluid builds up inside the skull and leads to brain swelling.

Ten-year-old Payton Kraft often finds himself playing alone.

“Other kids don’t understand what I go through. None of them do,” said Payton.

“Payton was probably 3 to 4 months old and we noticed he wasn’t progressing like normal children do. He was delayed,” said Payton’s mother, Sarah Wilson-Kraft.

That delay, had Payton’s mom, Sarah panicked something was wrong.

“His head was extremely large for his age…They measured his head many of times and they sent us for a cat-scan and that’s when he was diagnosed,” said Wilson-Kraft.

Payton was diagnosed with Hydrocephalus, which is an incurable, brain disease.

“There was a lot of fear, unknowing what was going to happen and concern for him,” said Wilson-Kraft.

September is National Hydrocephalus Awareness month. Payton’s mom is raising funds with arts and crafts with the hope of one day finding a cure.

“The only thing we can do is pray everyday there’s no infection,” said Wilson-Kraft.

In the meantime, a shunt was placed in Payton’s brain.

“It’s in the center of his head, that goes down his neck into his stomach and drains the fluid out,” said Wilson-Kraft.

Payton considers himself a fighter, but he says every now and then his shunt hurts him. He vows to never give up and to continue educating others about his condition.

“I hope one day that there will be an end to this,” said Payton.

In her spare time, Payton’s mom, Sarah Wilson-Kraft, spends her time crafting to help fundraise for a cure to Hydrocephalus. She makes scarves, wreaths, bracelets, ribbons and bows, rugs and tu-tu’s. To check out those items and help fundraiser for Hydrocephalus, click here.

To donate to Payton and help fund a cure for Hydrocephalus, click here.

FRESNO, Calif. (KMPH) –

Carrie Awbrey, California Chapter Director for the Pediatric Hydrocephalus Foundation, visited Great Day to talk about a perilous condition more commonly known as “water on the brain.”

The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this brain condition.

The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus.

The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.

The PHF, Inc. is a non-profit 501 (c) (3) charitable organization and as such, all contributions are tax deductible to the extent allowed by law.

Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus.

As part of the PHF’s Hydrocephalus Awareness Over America (HAOA) campaign, today, Saturday, September 21st is the 1st ever Hydrocephalus Awareness Day in Hawaii!!

Congratulations to PHF State Chapter Director’s Shaula Tualaulelei & Amanda Klebe in getting this done, and to Governor Abercrombie for his participation:

PHF Michigan State Chapter Co-Director’s Jason & Carmen Adams and Donna West are featured in the September Issue of The Altum Advocate