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  • 2014: Is Your Child the Face of National Hydrocephalus Awareness?

    November 29, 2013 by  
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    We are looking for one male and one female ‘Face of Hydrocephalus’ to serve as our National Spokesperson for our 2014 National Hydrocephalus Awareness Campaign, with marketing and promotional materials all through the year ending September 2014 with National Hydrocephalus Awareness Month.

    We will randomly select ONE male and female from all entries received. Submit a picture of your nominee, between the ages of newborn to 19 years old, with their name and D.O.B. (These pictures MUST BE E-MAILED to mike@hydrocephaluskids.org- Facebook entries are not valid)

    The 2 winners will be awarded $250.00 donations in their name to a 2014 Hydrocephalus Research Project & a 2 NIGHT STAY @ the Embassy Suites in Washington DC during our 4th Annual PHF Day of Hydrocephalus Awareness on Capitol Hill Event on 8/21 & 8/22 in 2014, (travel not included).

    To enter, email a picture of your nominee, (between the ages of newborn to 19 years old), with their name, D.O.B. & current city & state)

    Contest ends 12/31/2013 & Winners announced on 1/2/2014
    * Email your picture to mike@hydrocephaluskids.org
    * Previous winners are not eligible.
    * PHF Board Members & State Chapter Directors ARE eligible to participate.
    * By submitting a photo, you agree that the picture may be used in promoting this contest, promotional materials for the PHF, and other PHF outreach campaigns.

    Check out the picture galleries of everyone nominated:

    The Boys
    The Girls

    ** PHF In The News **

    October 19, 2013 by  
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    Hydrocephalus Awareness Month: Audubon Youth Advocating For Her Condition


    PHF In The News: Run raises money, awareness

    October 18, 2013 by  
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    COLONIAL HEIGHTS – Calls of “Faster! Faster!” from 11-year-old Casey Wray quickly turned into “Whoa!” as a group of four pushing his running stroller kicked into full speed Saturday.

    The 5k race that started at White Bank Park was held for his birthday, which was two days earlier. It also was organized by his mother, Belinda Wray, to help raise money and awareness for the Pediatric Hydrocephalus Foundation.

    Casey, who was born with hydrocephalus, loves to participate in runs but he doesn’t have the mobility to run the distance himself, Belinda Wray said. But he has plenty of support.

    “Team Casey” — made up of Laura-Beth Louthan, Ali Smith, Dana Barefoot and Matt Ruland — pushed him through the course and he finished third overall in the race.

    “He loves racing and this is a great way to do that,” said Belinda Wray. She said he has several more races coming up.

    Despite the gray skies and light rain Saturday, about 75 people participated in the run.

    Mayor Scott Davis was present to blow the air horn to signal the start and he also presented a proclamation making it “Casey Wray Day.”

    Hydrocephalus is a condition where cerebrospinal fluid builds up around the brain. The excessive liquid can lead to abnormal widening of spaces in the brain called ventricles and creates pressure on the tissue. Symptoms can vary as can the cause.

    It happens in about one or two people per 1,000.

    Symptoms may include vomiting, sleepiness, irritability, downward deviation of the eyes and seizures. Other possible symptoms are loss of coordination or developmental delays. The disorder is typically treated with a shunt that diverts fluid to another part of the body.

    The event benefited the Pediatric Hydrocephalus Foundation, an all-volunteer nonprofit that raises awareness about hydrocephalus and provides support to families and children affected by the brain condition. PHF also raises money to find new treatment options, advocates on behalf of the members of the hydrocephalus community, and lobbies policy makers. Visit www.HydrocephalusKids.org for more information.

    Source:

    PHF In The News: A Race for Casey Wray

    October 14, 2013 by  
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    Source: The Colonial Voice

    PHF In The News: Mini-Golf Morning to Raise Awareness of Pediatric Hydrocephalus

    October 7, 2013 by  
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    The Pediatric Hydrocephalus Foundation hosts a number of family activities around Woodbridge to raise money and awareness of a pediatric brain condition.

    Skyline Mini-Golf had a line full of families on Saturday morning during an event meant to raise awareness of a childhood brain condition.

    The Pediatric Hydrocephalus Foundation was founded by Woodbridge residents Michael and Kim Illions in 2009, after their son, Cole, was diagnosed with the brain condition.

    The foundation has since grown to include 35 state chapters and one in Africa, according to the Illions.

    Proceeds from the event came from 16 hole sponsorships on behalf of Woodbridge businesses and individuals, including Mayor John McCormac and Assemblyman Craig Coughlin, Michael llions said.

    The “family fun” event was intended to raise awareness among participants, who were charged the same rate as Skyline Mini-Golf charges at any other time, he said.

    The Pediatric Hydrocephalus Foundation’s next event will be a spaghetti dinner from 2-6 p.m. Nov. 3 at the Edison Elks, 375 Old Post Road in Edison. Tickets are $12 for adults and teenagers, $6 for children ages 5-12 and free for children ages 4 and younger. A 50/50 raffle, silent auction and basket raffle will be held.

    Visit www.HydrocephalusKids.org for more information.

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