Read more at: https://html.com/attributes/img-width/>
CONGRESSMAN LANCE: SEPTEMBER IS NATIONAL HYDROCEPHALUS AWARENESS MONTH
September 24, 2012 by PHF
Filed under Uncategorized
WASHINGTON– Congressman Leonard Lance (NJ-07) issued the following statement in support of September as National Hydrocephalus Awareness Month.
“Today we recognize September as National Hydrocephalus Awareness Month. For too long, little attention has been paid to hydrocephalus.
This condition can occur at any age and affects an estimated one million Americans.
In fact, one out of every 500 babies in the United States is born with hydrocephalus, making the condition the leading cause of brain surgery in children. Additionally, an increasing number of our veterans are developing post-traumatic hydrocephalus as a result of brain injuries suffered on the battlefield.
Currently, there is no single known cause of hydrocephalus or ways to prevent or cure the condition.
The National Institute of Neurological Disorders and Stroke is currently conducting research related to hydrocephalus prevention and treatment. However, more must be done at the community level to educate the American people about this surprisingly prevalent disorder.
Recognizing the month of September as National Hydrocephalus Awareness Month will bring this disease to the public’s attention and, I believe, will encourage the discussions necessary to address more effectively the devastating effects of this disease and provide support to families who live with it every day. Today I commend the hard work of the Michael and Kim Illions of Woodbridge, New Jersey for their advocacy on behalf of their son, Cole.
I am certain that with federal support for additional research we can develop a better treatment, and eventually a cure, for those suffering from hydrocephalus and help them live healthier, fuller lives.”
In the House of Representatives, Lance is a founding member and co-chair of the Congressional Hydrocephalus Awareness Caucus and actively works to raise awareness of the disease.
In the photo: Rep. Lance talks with Cole Illions of Woodbridge (NJ) whose parents Michael and Kim have worked tirelessly to educate members of Congress and the public about Hydrocephalus.
PHF 2010 Year in Review
December 31, 2010 by PHF
Filed under Uncategorized
Comments Off on PHF 2010 Year in Review
The PHF raised over $50,000 in 2010, thanks in large part to some very successful WALK/Family Fun Day events in New Jersey and New York, in addition to Spaghetti Dinners in Rhode Island and New Jersey.
Read more
‘Baby Klaus’ Has a Merry Christmas
December 27, 2010 by PHF
Filed under Uncategorized
Comments Off on ‘Baby Klaus’ Has a Merry Christmas
Woodbridge, NJ – The story of ‘Baby Klaus’ and his battle against severe Hydrocephalus captivated the Nation in the beginning of the month. Sheri Burdine and her Hydro Angels Over Texas organization stepped in and got ‘Baby Klaus’ the medical attention he needed, which resulted in an onslaught of media coverage and attention about ‘Baby Klaus’ and Hydrocephalus.
Read more
