Read more at: https://html.com/attributes/img-width/>
PHF In The News: 18 Holes for Pediatric Hydrocephalus Awareness
September 26, 2013 by PHF
Filed under Uncategorized
Comments Off on PHF In The News: 18 Holes for Pediatric Hydrocephalus Awareness
Play mini-golf on Oct. 5 to raise money to research and cure the condition.
The Pediatric Hydrocephalus Foundation invites Woodbridge families to Skyline Mini-Golf on Saturday, Oct. 5 for a fundraising event that will benefit children with the brain condition.
At 10 a.m. Oct. 5, Mini-Golf Family Fun Day will entail rounds of mini-golf, giveaways and door prizes.
The day’s guests of honor are Anthony Pascale and Cole Illions, two eight-year-old boys living with the condition who have undergone a total of 15 brain surgeries, according to a press release from the Pediatric Hydrocephalus Foundation.
Cole Illions’ parents are Michael and Kim Illions, Woodbridge residents and founders of the Pediatric Hydrocephalus Foundation.
Admission is $7 for adults, $5 for children.
Visit www.HydrocephalusKids.org for more information.
Contact Kimberly Illions at 732-634-1283 or kim@hydrocephaluskids.org for more information.
Source: 
PHF in the News: Walk for the Pediatric Hydrocephalus Foundation This Weekend
September 5, 2013 by PHF
Filed under Uncategorized
Comments Off on PHF in the News: Walk for the Pediatric Hydrocephalus Foundation This Weekend
The walk begins at 11 a.m. Saturday at Roosevelt Park in Edison.
The Pediatric Hydrocephalus Foundation will once again lace up their walking sneakers on Saturday for the 7th Annual Walk & Family Fun Day.
The day will begin at 11 a.m. Saturday, Sept. 7 at Roosevelt Park in Edison, and is free.
Donations will be accepted to benefit the Pediatric Hydrocephalus Foundation, a nonprofit organization founded by Woodbridge residents that raises awareness of the brain condition and money for a cure.
The day will include face painting, music, refreshments, “Jedi Knight Training” and appearances by characters from Star Wars, according to a press release from the organization.
Registration for the walk open at 10 a.m.
Contact Kimberly Illions at 732-634-1283 or kim@hydrocephaluskids.org for more information.
Source:
CONGRESSMAN LANCE: SEPTEMBER IS NATIONAL HYDROCEPHALUS AWARENESS MONTH
September 24, 2012 by PHF
Filed under Uncategorized
WASHINGTON– Congressman Leonard Lance (NJ-07) issued the following statement in support of September as National Hydrocephalus Awareness Month.
“Today we recognize September as National Hydrocephalus Awareness Month. For too long, little attention has been paid to hydrocephalus.
This condition can occur at any age and affects an estimated one million Americans.
In fact, one out of every 500 babies in the United States is born with hydrocephalus, making the condition the leading cause of brain surgery in children. Additionally, an increasing number of our veterans are developing post-traumatic hydrocephalus as a result of brain injuries suffered on the battlefield.
Currently, there is no single known cause of hydrocephalus or ways to prevent or cure the condition.
The National Institute of Neurological Disorders and Stroke is currently conducting research related to hydrocephalus prevention and treatment. However, more must be done at the community level to educate the American people about this surprisingly prevalent disorder.
Recognizing the month of September as National Hydrocephalus Awareness Month will bring this disease to the public’s attention and, I believe, will encourage the discussions necessary to address more effectively the devastating effects of this disease and provide support to families who live with it every day. Today I commend the hard work of the Michael and Kim Illions of Woodbridge, New Jersey for their advocacy on behalf of their son, Cole.
I am certain that with federal support for additional research we can develop a better treatment, and eventually a cure, for those suffering from hydrocephalus and help them live healthier, fuller lives.”
In the House of Representatives, Lance is a founding member and co-chair of the Congressional Hydrocephalus Awareness Caucus and actively works to raise awareness of the disease.
In the photo: Rep. Lance talks with Cole Illions of Woodbridge (NJ) whose parents Michael and Kim have worked tirelessly to educate members of Congress and the public about Hydrocephalus.
Article on Hydrocephalus Flag-Raising Event in Woodbridge, New Jersey
September 22, 2012 by PHF
Filed under Uncategorized
Featured in picture; Jeffrey W., Ally J., Cole Illions & PHF President Kim Illions & Vice President & National Director of Advocacy Michael Illions
