Brooklynn Reiter keeps overcoming any obstacle that is thrown her way – especially eight brain surgeries.

She gets strength from football.

The 8-year-old from the Myrtle Beach, S.C., area is often sitting next to her dad, John, watching their beloved Oakland Raiders.

She especially has her eyes on her favorite Raiders player: Derek Carr.

Decked out with her Raiders apparel and pom-poms, Brooklynn cheers on Carr and the Raiders when they play.

Carr returned the favor last week, sending her a letter and an autographed picture wishing her well.

“Now you are my #1 HERO!” Carr wrote.

“I was about to scream because he actually signed it and I liked it,” Brooklynn said in a telephone interview. “I jumped up and down.”

Her dad is a lifelong Raiders fan. She became a Raiders fan at an early age and had a Darren McFadden jersey, just like her dad.

“She got to a point when someone would get ready to hike the ball or coming out of the huddle, her feet would start kicking.,” he said. “When she got older, she would watch the game with me more and more. One day she looked at me and said, ‘I love the Raiders, too.’ It just took off from there.”

She pays close attention when Carr gets sacked – she doesn’t want him to get hurt, and especially worries about head injuries.

Brooklynn worries because she has an incurable brain condition called hydrocephalus, a buildup of cerebral fluid that can put pressure on the brain. She has a shunt to drain the fluid, but when it fails, she needs surgery, the latest before Thanksgiving.

“I’m always scared,” she said of her concern for Carr, “if he gets admitted to the hospital or broke a part of his body.”

Carr aimed to calm her fears in his letter.

“Don’t you worry about me,” Carr wrote. “When I get hit, it is usually not that hard.” (Carr put in a smiley face at the end.)

Brooklynn was one of two selected as the 2019 National Ambassador of Hydrocephalus Awareness for the Pediatric Hydrocephalus Foundation. Brooklynn and her family will be going to Washington, D.C., in August to meet with two senators and a congressman.

Carr wished Brooklynn well on her trip to Washington and concluded, “Keep fighting the fight and know that #4 is your biggest fan!”

Source:

8-year-old girl has survived eight brain surgeries and fears for her favorite player when he takes a blow to the head

by Tom LaMarre

Derek Carr and the Oakland Raiders have fans everywhere, but perhaps none quite like Brooklynn Reiter.

The 8-year-old from Forestbrook, S.C., has a rare, incurable brain condition known as hydrocephalus, and in fact is 2019 Ambassador for the Pediatric Hydrocephalus Foundation.

Brooklynn, who has survived eight surgeries to drain fluid from her brain, is part of a family of huge Raider fans, and her favorite player is Carr, but she is concerned every time the quarterback takes a hard hit.

“(Brooklynn) worries every time he gets hit in the head that he’ll get ‘sick like me and need brain surgery,’” Reiter’s mother, Kristen, said.

Brooklynn, who watches the games in the family’s “Raider Room,” had plenty of opportunities to worry about Carr during the 2018 season because he was sacked a career-high 51 times.

Carr was touched when he heard about his young fan and mailed her this letter along with an autographed picture of himself:

Dear Brooklynn, I hope this letter finds you well. My business manager explained to me that you are am amazing 8-year-old that has had to overcome some very difficult odds.

Love you,
Derek Carr,
Oakland Raiders QB.

Hydrocephalus is a rare brain condition occurring at birth, affecting about one in every 500 babies.

Untreated, it can be fatal.

“Some people don’t know what the word means and they don’t know how to say it,” Brooklynn said.

The condition causes excessive fluid to gather in the brain, abnormally widening spaces in the brain and placing potentially harmful pressure on brain tissues.

And the surgery comes with no guarantees.

“Its scary,” said Brooklynn’s father, John. “You don’t really know what’s going to happen from one day to the next. The shunts (placed in the brain) on average have a 50 percent success rate. They either work or they don’t.”

So far, Brooklynn is 8-for-8, and in addition to cheering for Carr and the Raiders, she enjoys drawing, playing, music, singing and dancing. She hopes to act in school plays when she is older.

For now, her motto is the same as her favorite team’s: “Just win, Baby!”

Source:

NFL Super Star Derek Carr Makes Hydro Hero Brooklynn Reiter Smile!

Oakland Raiders Star Quarterback Derek Carr heard all about Brooklynn’s 8 surgeries, being named the female National Ambassador of Hydrocephalus Awareness, and her concern for him getting hit in the head and getting sick and needing brain surgery like her.

Brooklynn just received in the mail an autographed picture and letter from Derek Carr, which reads:

Dear Brooklynn,

Love you,
Derek Carr
Oakland Raiders QB

HORRY COUNTY, S.C. (WPDE) — Like many eight year olds, Brooklynn Reiter spends her time drawing, playing music, and cheering on her Oakland Raiders.

“Because my dad likes them. And me and my dad watch them,” Brooklynn said.

Now, she’ll add another activity to that list: being a 2019 ambassador for the Pediatric Hydrocephalus Foundation.

Hydrocephalus is a rare brain condition, affecting around one in every 500 babies.

“The fluid around your brain doesn’t drain on its own,” father John Reiter explained.

Brooklynn has undergone one surgery every year to clear the fluid.

“It felt weird at first. But whenever you fall asleep. It doesn’t feel that weird,” Brooklynn said.

As a parent, her father says its tough to see his daughter go through something so painful.

“Its scary. You don’t really know whats going to happen from one day to the next,” John Reiter said. “The shunts on average have a 50% success rate. They either work or they don’t,”

So far, Brooklynn’s shunts have been successful.

Now, her goal is to raise awareness about the rare condition.

“Some people don’t know what the word means and they don’t know how to say it,” Brooklynn said.

Her motto echoes her favorite team.

“Just win baby.”

Source:

8-Year-Old Brooklynn Reiter From South Carolina Selected as 2019 National Ambassador of Hydrocephalus Awareness for Incurable Brain Condition

First time we ever heard the word hydrocephalus was when I was 20+ weeks pregnant at a ultrasound. She was born on 12-31-10 and had her first ETV surgery at 4 days old.

After about a month she was back in surgery for another ETV attempt due to the first one closing. A month later she was in surgery again to place a shunt.

She has had 4 shunt revisions since then. The latest being just this past November 4th, you can find a more in depth post about that on my Facebook page.

Brooklynn has also had surgery to correct the nerves behind her eyes due to the pressure. So, she has had a total of 8 surgeries due to hydrocephalus.

She was also diagnosed with IS as a baby but has since been seizure free.