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  • Rhode Island’s Congressional Delegation Join the Congressional Pediatric & Adult Hydrocephalus Caucus

    September 7, 2012 by  
    Filed under Uncategorized

    Rep. James Langevin & Rep. David Cicilline Join Hydrocephalus Caucus

    Thanks to our efforts in DC for PHF’s Hydrocephalus Awareness Day on Capitol Hill on Friday August 24th, I am pleased to announce that 2 more Members of Congress have joined the Congressional Pediatric & Adult Hydrocephalus Caucus. They are Rhode Island Congressmen; Rep. David Cicilline & Rep. James Langevin. Just days ago, Pennsylvania Congressman Tim Murphy announced he had also joined the Hydrocephalus Caucus.

    Congressman Tim Murphy Joins the Hydrocephalus Caucus

    September 1, 2012 by  
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    The following article appeared in the latest edition of Congressman Murphy’s E-Newsletter.

    Murphy Joins Hydrocephalus Caucus

    Hydrocephalus is a neurological condition caused by abnormal buildup of cerebrospinal fluids (CSF) in the ventricles of the brain. The condition can occur at any age, affects an estimated one million Americans, and in some cases, can cause death. One out of every 500 babies is born with hydrocephalus in the US, and is the leading cause of brain injury in children. Instances of hydrocephalus are also being found in an increasing number of veterans who develop the condition as a result of brain injuries suffered on the battlefield. Unfortunately, there is no known single cause of hydrocephalus and there have not been significant advancements for treatment over the last fifty years.

    Jenna Sciulli, a resident of Chartiers Township in Washington County, has been working to raise awareness about the issue both locally and nationally. Sciulli, who serves as Pennsylvania State Director of the Pediatric Hydrocephalus Foundation (PHF) recently visited Rep. Murphy’s office to discuss the challenges facing parents of children with this condition. She knows first-hand what it’s like because her five-year-old son has hydrocephalus and must attend speech and physical therapy every week.

    “I commend Mrs. Sciulli for her tireless efforts to educate lawmakers and the public about this healthcare issue,” said Congressman Murphy, who serves as co-chair of the Doctors Caucus in the House. “Thanks to her dedication, I am joining the Congressional Hydrocephalus Caucus to help inform members of Congress about important research into hydrocephalus diagnosis and treatment, so we may save lives and one day find a cure.”

    Mrs. Sciulli’s work will soon be recognized locally when Washington County designates Sept. 22 as Hydrocephalus Day. On Sunday, September 23rd, her organization will host a bake sale and fundraiser at the Country Angels Tea & Coffee Shop, which is located at The Shoppes at Quail Acres on route 19 one-half mile east of the Tanger Outlets. For more information click here.