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PHF Attends RDLA’s Rare Disease Lobby Day & Conference
March 4, 2013 by PHF
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The PHF’s Michael Illions, Vice-President & Director of Advocacy, & Jason Adams, PHF Michigan State CO-Director, attended the Rare Disease Lobby Day & Conference last week in Washington DC.
Michael met with staffers from Senator Robert Menendez & Congressman Rush Holt’s office, and personally with Congressman Leonard Lance, while Jason met with staffers from Congressman Mike Rogers, Congresswoman Candice Miller & Senator Carl Levin’s office.
The RDLA’s Lobby Day & Conference brought together over 150 parent advocates, patients, health-care providers & organizations to engage in conversations on many topics critical to the Rare Disease community.
