PHF In The News: GM plant helping raise awareness of rare disorder; benefit concert Saturday
May 4, 2014 by PHF
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DETROIT, MI- Employees of one of General Motors Co.’s largest Michigan production facilities are rallying together to help raise awareness of an incurable disorder that is impacting one of their fellow employees and his family.
Hawke Adams, 5-year-old son of quality engineer Jason Adams at GM Detroit-Hamtramck Assembly, has hydrocephalus – a disorder that causes excessive accumulation of fluid in the brain that creates harmful pressure that can be fatal.
“It’s real personal to me,” said Jason Adams, who also serves as co-director of the Pediatric Hydrocephalus Foundation. “So, the plant leadership, UAW and GM as a whole got behind the idea of, ‘let’s do something.’ ”
As part of a monthly “diversity initiative” program, workers and plant leadership decided to help sponsor a benefit concert with the “Teen Nation Tour” in an effort to help raise awareness of the disorder, which has already caused Hawke to have 10 brain surgeries.
Doneen McDowell, Detroit-Hamtramck plant manager, said once hearing about Hawke, the Diversity Initiative team felt the concert was a great opportunity to help.
We wanted to figure out a way we could support Jason because he does a lot for the Pediatric Hydrocephalus Foundation,” she said. “Not only because his son has it, but he’s developed a connection with other families that have it.
“We felt a connection the minute he started talking about it.”
The concert, which features a number of young singers, is scheduled for 7 p.m. Saturday at the UAW-GM Center for Human Resources, 200 Walker St. in Detroit. Doors open at 5:30 p.m., followed by a special red carpet entrance by the performers at 6 p.m. and a VIP meet-and-greet at 6:30 p.m.
Tickets are still available starting at $5 for children 6-12 years old and $10 for adults and VIP tickets to meet the performers. Children under 6 years old are free. For tickets, call 810-441-9170 or email Jason.Adams@gm.com.
Proceeds from the “Teen Nation Tour” concert will go toward the Pediatric Hydrocephalus Foundation, which Jason Adams and others also annually lobby for on Capitol Hill.
Performers include former “X Factor” contestant J Ryan, 14, of San Antonio, Texas; Tristan Blaine, 14, of Frisco, Texas; Nic Neufeld, 11, of Dodsland, Saskatchewan; Faith Marie Shirley, 15 of San Antonio, Texas; Collin Kozola, 17, of Naperville, Illinois, Katie Akin, 14, of Atlanta, GA; and Kaity Floyd, 20, of Dallas.
The number of people who develop hydrocephalus or who are currently living with it is difficult to establish since the condition occurs in children and adults, and can develop later in life. Some estimates report one to two of every 1,000 babies are born with hydrocephalus.
For more information on the Pediatric Hydrocephalus Foundation, or to donate, visit hydrocephaluskids.org.