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Rare Disease Report Interview w/ PHF’s Michael Illions
March 26, 2014 by PHF
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Rare Disease Report:
The Pediatric Hydrocephalus Foundation (PHF) was established by Kim and Michael Illions to raise awareness of this brain condition and provide support to the families living with hydrocephalus.
Combining both of those activities, the foundation will be in Washington this August to educate legislators about hydrocephalus and the foundation will provide assistance to all families wanting to attend this annual event.
PHF is also heavily involved in the community and has multiple fundraisers throughout the year, including ones at Detroit Tiger games.
Hydrocephalus — also referred to as water on the brain — is a lifelong condition in which persons have excessive accumulation of cerebrospinal fluid (CSF) within the ventricles of the brain. Current treatment is usually to surgically insert a shunt that drains the excess CSF to other areas of the body (usually the abdominal region). During a person’s lifetime, multiple surgeries are usually necessary to replace or fix the shunts.
In this exclusive interview with Rare Disease Report, co-founder of PHF, Michael Illiions, describes the foundation and the upcoming meeting they have in Washington this summer.
