PHF In The News: Fundraiser walk to be held Sept. 20 for pediatric ailment
September 7, 2014 by PHF
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Durango city councilors were set to approve Tuesday a proclamation drafted by Christina Brown that adds hydrocephalus to the crusades, causes and campaigns for which September is recognized.
Brown, whose son, Jaden, 4, has the condition, gained a similar proclamation last summer from Gov. John Hickenlooper. September was designated National Hydrocephalus Awareness Month by Congress in 2009.
Hydrocephalus, found in about 1 in 500 births, is a swelling of the brain caused by the accumulation of the fluid that surrounds the brain and spinal cord.
Brown, chairwoman of the state chapter of the Pediatric Hydrocephalus Foundation, said Tuesday that a 5-kilometer walk fundraiser for the cause is scheduled Sept. 20 in the Three Springs area.
The 5K walk begins at 10 a.m. at the plaza, 175 Mercado St., near Mercy Regional Medical Center. Walkers can register starting at 9 a.m.
Online registration can be done at http://www.active.com/donate/phfwalkco2014
daler@durangoherald.com
PHF in the News: Hickenlooper recognizes brain-swelling condition
September 6, 2013 by PHF
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Durangoan, whose son has hydrocephalus, pressed for Colo. representatives’ support
The proclamation by Gov. John Hickenlooper designating September as Hydrocephalus Awareness Month came through the effort of a Durango woman whose son has the condition.
Christina Brown drafted a proclamation in mid-July and sent it to the governor’s office. She learned a month later it had Hickenlooper’s signature.
Brown’s son, 3½-year-old Jaden, has hydrocephalus, a swelling of the brain caused by an accumulation of the fluid that surrounds the brain and spinal cord, a condition found in one in 500 births.
About 1 million adults and children in the United States have hydrocephalus.
Brown said she found support from the region’s representatives in Washington, D.C., when she visited Capitol Hill with 140 members of the national Pediatric Hydrocephalus Foundation last week. The contingent represented the country from coast to coast.
Brown is the founder and director of the Colorado chapter of the Pediatric Hydrocephalus Foundation. She can be reached at christina@hydrocephaluskids.org.
She said U.S. Sens. Mark Udall and Michael Bennet and U.S. Rep. Scott Tipton appeared receptive when she urged them to support efforts to fund hydrocephalus education and research.
Brown said Jaden is doing very well and is receiving speech, physical and occupational therapy.
Contact Christina Brown at christina@hydrocephaluskids.org for more information.